Tuesday, September 25, 2012

Positivism

M is doing well. She gets checked up on Mondays and Thursdays and since she had a transfusion last Thursday she was great yesterday. She brought herself to Steeplechase and went food shopping after. It's nice to know she has her energy back. That's really all I have to report. 

Still waiting for more positive things to occur....


“Something did happen to me somewhere that robbed me of confidence and courage and left me with a fear of discovery and change and a positive dread of everything unknown that may occur.” 
― Joseph Heller



Thursday, September 20, 2012

OOPSIE

Hey there. Long time no blog. 

M was released from the hospital Wed September 5. She has had little to no complications and all her levels are going up and up. Which is great. Even her white cell count has increased which means her body isn't fighting off an infection, which means none of us have gotten her sick ;) She's received a few platelet transfusions because those are hardest for her to keep up. If you are still interested in donating blood or platelets I would now steer you toward Steeplechase because it would get to her faster there since she is out of RWJ now. She has an appointment for Sloan Kettering on October 4 (I will be in St. Louis and so sad that I can't go with her);  when I get more information on that I will post. 

She's been doing normal stuff... but she gets tired easily. Three of her friends from out of town came to visit her last week and she really enjoyed that; they all went to high school together and have been friends ever since. They thought they were going to be spending their time in the hospital but luckily she was out. She is thankful to be home. 

Dad has had no complications either. I can't believe he is going to be 70 in a month. You would never know. It's amazing. He should be going for his full body scan within the next two months. 

I'm trying my best to give M some breathing room but also keep an eye on her and get her out of the house (when possible) or do things for her, so that's why I haven't been on here. Also, I still have no computer at home so I only do this at work, and at work lately I have been on a serious hunt for a new job. A few interviews under my belt... too many recruiters all up in my business but hopefully change is on the Horizon. Still working at the Hotel serving and bar tending too... between that and Zumba(r) and a bunch of show's for The 39 I hardly have time for much. The Owner of one of the bars that we go to for The 39 shows asked me to bar tend there (they need it, their staff is horrific) and I filled out an application. I can never say no. I always take on way too much. 

Manfriend's family encountered a very tragic loss this month also. I pray (in my own Pagan way) that the family receives the support, love and strength that they need. I really even can't say much about it without just staring into space because of a loss of words. In time maybe it will be easier. 

So for now, just trying to live life. 

I have big plans for the weekend: making a shadow box for my brother's band. He is super excited about it. I also get to visit with friends that I haven't seen in months, which is nice too. I took off at the Hotel for a birthday that isn't being celebrated so I am not going to work this weekend. It's nice to not have to worry about that place for a little while. Now that my life isn't being spent in a hospital or at work or at my other work... I am going to try to get back into choreographing some Zumba(r) routines. It was so hard not having the time to focus on it. Depressing, actually. Exercise and dance are the things that make me feel alive... and I need to start feeling alive again. I also hate to admit that I haven't kept up with the running the way I intended to. However, my cousin who was going to run the 5K with me can't go, and I honestly don't want to go alone for the first time. Now that I think about it, maybe alone is the best way to start. At any rate, signing up for two 5K's in the spring sounds much more enjoyable (and do-able). 

I will keep in touch, thanks for reading. 


"After the game, the king and the pawn go into the same box."
-Italian Proverb




*** Update after the fact: M is having 2 pints of blood and 1 bag of platelets transfused this afternoon. If you're still willing to donate - go for it. She is going to need it. She needs her levels up to go to Sloan. 




Wednesday, September 5, 2012

Home Sweet Home

M may be coming home today! It will be great to have her at her own house. I won't know  until later today so maybe I will be able to post this afternoon or tomorrow morning. 

Fingers crossed!