As I mentioned last week, no signs of remission for M regarding her bone marrow. They may bring her back in a few weeks to check it again, but they don't expect any different or more positive results.
As for going home, we were told yesterday (Tuesday) that she should be cleared for dismissal tomorrow (Thursday). However, she has run a low-grade fever since late last week, and even though they haven't been pushing any fever reducers on her they need her fever to remain steady to let her leave. It's so frustrating. MDS/AML causes fever in patients. Recovering from chemo causes fever in patients. Getting platelet and blood transfusions cause fevers in patients. All of these things are normal, except they treat any and all fevers in hospitals as "infections" and must treat them and bring them back to normal. Well, M is not happy about this at all, as you can imagine.
As of this very moment, I am expecting to pick her up tomorrow. As of tonight, I could get a call saying that her dismissal has been delayed. So, I have no idea when she is coming home.
When she gets home, she has to be very careful not to get infections or fevers. She can still go to Steeplechase for transfusions and tests. She can have a hospice service come and do those at the house if she doesn't feel like driving to Steeplechase. She is still saying that she does not want to go back to Sloan (or Steeplechase for that matter) for any more chemo treatments. She is done putting her body through this torture for no positive outcomes. I am hoping that she will get a fresh perspective when she can look at things from her couch and living room, instead of from the bed in Sloan.
That's all for now. Hopefully my next post will be when she is coming home. Thanks.
“After you find out all the things that can go wrong, your life becomes less about living and more about waiting.”
― Chuck Palahniuk, Choke
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